TeleFamilies is based on the former U Special Kids Program, a medical home center that provided advanced practice nurse (APN) telephone care coordination and case management to children with complex special health care needs living throughout the state of Minnesota. The following publications describe the program, its impact on hospitalizations and a pilot video telehealth study.

  • Kelly, A., Golnik, A., & Cady, R. (2008). A medical home center: Specializing in the care of children with special health care needs of high intensity. Maternal & Child Health Journal, 12(5), 633-640. doi:10.1007/s10995-007-0271-7
  • Cady, R., Finkelstein, S., & Kelly, A. (2009). A telehealth nursing intervention reduces hospitalizations in children with complex health conditions. Journal of Telemedicine & Telecare, 15(6), 317-320. doi: 10.1258/jtt.2009.090105
  • Cady, R., Kelly, A., & Finkelstein, S. (2008). Home telehealth for children with special health-care needs. Journal of Telemedicine & Telecare, 14(4), 173-177. doi: 10.1258/jtt.2008.008042

All children enrolled in TeleFamilies have complex special health care needs. The following publications describe this population.

  • Cohen, E., Kuo, D. Z., Agrawal, R., Berry, J. G., Bhagat, S. K., Simon, T. D., & Srivastava, R. (2011). Children with medical complexity: An emerging population for clinical and research initiatives. Pediatrics, 127(3), 529-538. doi: 10.1542/peds.2010-0910
  • Houtrow, A. J., Okumura, M. J., Hilton, J. F., & Rehm, R. S. (2011). Profiling health and health-related services for children with special health care needs with and without disabilities. Academic Pediatrics, 11(6), 508-516. doi: 10.1016/j.acap.2011.08.004

APN care coordination is the foundation of TeleFamilies. The following publications describe care coordination.

  • Lindeke LL, Leonard BJ, Presler B & Garwick A. (2002). Family-centered care coordination for children with special needs across multiple settings. Journal of Pediatric Health Care, 16(6), 290-7. doi: 10.1067/mph.2002.121917
  • Presler B. (1998). Care coordination for children with special health care needs. Orthopaedic Nursing, 17(2 Suppl), 45-51.

APN care coordination is delivered from the clinic to the child’s home using two forms of telehealth: telephone and video. The following publications describe similar clinic-to-home telehealth interventions.

  • Finkelstein, S. M., Speedie, S. M., Zhou, X., Potthoff, S., & Ratner, E. R. (2011). Perception, satisfaction and utilization of the VALUE home telehealth service. Journal of Telemedicine & Telecare, 17(6), 288-292. doi: 10.1258/jtt.2011.100712
  • McConnochie, K., Wood, N., Herendeen, N., ten Hoopen, C., Denk, L., & Neuderfer, J. (2010). Integrating telemedicine in urban pediatric primary care: Provider perspectives and performance. Telemedicine and e-Health, 16(3), 280-288. doi:10.1089/tmj.2009.0112
  • Virtual physician visits: National push for convenient, affordable healthcare. (2010). Telemedicine and e-Health, 16(3), 274-279. doi:10.1089/tmj.2010.9980